Hello. My name is Roy Stacey. I am in my mid fifties and have had MS for about sixteen years.
For the first couple of years my symptoms were relatively benign, but then they started to get a little bit worse. I eventually went onto Avonex and had about eight years relatively new symptom free. Unfortunately good things don't last forever.
About four years ago my ability to walk, basically use my entire right side, started to deteriorate. I went from walking about sixteen blocks daily to having difficulty walking in my own home. My neurologist said my MS had changed from relapsing remitting to secondary progressive. And progress it has.
My neurologist said the common MS drugs would not do me any good any more, but that they had some success with a chemo therapy drug called mitoxantrone.
I did about nine months of the treatments, saw no benefits, so stopped the regime in June of 2010.
I had been working until then [desk job of course] but over the summer realized I just couldn't keep it up. I met with my neurologist in September, got the forms signed for medical long term disability, and told her I was thinking of going for the 'Liberation treatment'. She was quite supportive, made some suggestions, and warned me of some possible pitfalls. I'm not sure if this is unusual in Canada, but I was certainly pleasantly surprised. I say this since the Canadian Government and Canadian Medical community do not condone this procedure.
So, that brings us to now. I 've been MS drug free for over six months and..
I'm going to have the liberation treatment in three days!
I am so excited!!
2 comments:
Roy:
We wish you well with the CCSVI treatment. We hope that your results are as dramatic as my wife's were when she had the procedure done 4 months ago. The Interventional Radiologist who performed my wife's procedure admitted to us that about 33% of the patients they treat have seen dramatic results while 33% see moderate improvement and 33% see little or no improvements. We hope that you fall into the first catagory. CCSVI treatment worked for us. Good luck.
JJ
Best of luck. Hope it all goes well. You're missed in the workplace. Our prayers are with you.
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