Still Alice

I just watched 'Still Alice', a sad but powerful movie, with some good ideas. I don't have Alzheimers, but I do have MS, another progressively debilitating disease.
So, I made a folder on my desktop called butterflynowings and in it put a video that goes like this;

Hello Roy. I am a younger version of you. Several months or several years may have past, but if you are viewing this your legs don't work, your arms don't work, you can't feed or clean yourself, and it is time.

This is very important, make sure you are by yourself. Go into the main floor bathroom and in the left hand drawer, way at the back is a vial with lots of pills. Draw a cup of water and take all the pills and then go lie down. It is very important to take all the pills and that you be alone.

Now go and do it.


 .....


Can't open the drawer?
Can't open the vial of pills?
Can't draw a cup of water?
Can't lie down on your own?


Ha Ha.

Well, 2015 has started out to not be a very good year. In less than four days I've already fallen twice. Not really fallen, but ended up on the floor, unable to get up.

The first was at night as I was getting into bed. I stayed up late, was tired, and just not careful enough. I transferred from my wheelchair to the edge of the bed but wasn't on it enough and slid off.

The second time I was in my office, in my office chair and was trying to get up and over to my wheelchair. To get up I pull myself forward and push up with my legs. My socks were too slippery, my legs too weak, and I ended up on the lip of my office chair and no way to get up or back into it properly; so I slid onto the floor.

Both times we had to get outside help to get me righted, but we did and I am ok.

It is January 1st, 2015. I have made it this far!